Ocular Manifestations of Ehlers-Danlos Syndrome

Ocular Symptoms Associated With Ehlers-Danlos Syndrome

Blurred vision that comes and goes; difficulty in accommodation
Diplopia (double vision) – out of one eye, or with both eyes open
“Photophobia” (light sensitivity)
Complete, or almost complete, loss of vision in one eye that lasts a few minutes; migraine auras, scintillating scotomas
Dry eyes
Tunnel vision
Floaters (EDS patients have more floaters than the general population.)
Flashes of light or a curtain over their vision
Vision that is not fully correctable with glasses or soft contact lenses. (Doctors should perform corneal topography on all patients with unexplained blurred vision.)
Myopia (nearsightedness) that increases very quickly
Doctors and EDS patients must not assume that their symptoms are always due to their EDS and are therefore unactionable. For example, even among the EDS population, the number one cause of fluctuating vision is diabetes.